Sunday, June 13, 2010

Oman Hereditary Blood Disorder Association

Dear Readers,
.
Many of you are aware that a LARGE number of Omanis suffer from hereditary blood disorders; namely G6PD (25% of males - 10% of females) , خلايا الدم المنجلية Sickle Cell Disease (6% of Omanis - mostly in Al Sharqiya region), and Thalasimia (2% of Omanis - mostly in Al Batinah and Muscat).
.
Sadly, awareness levels are low and the Omani health system (and society) does not encourage pre-marital testing. Given that these diseases are so widely spread in Oman, IT IS OF EXTREME importance that couples have blood tests done before they even consider getting married. It is also important to learn more about these diseases and how to deal with them.
.
Recently, the Omani Hereditary Blood Disorder Association was launched with the aim of spreading awareness on how to deal with these disorders and how to avoid spreading these hereditary diseases. The association also hopes to provide counselling for families with infants who were screened positive by the state labratory.
.
To association will be observing the world's first Annual Sickle Cell Day on June 19 and 20 at Muscat City Centre. If you check our their website, you can find their bank account if you'd like to donate. Otherwise, if you live in the Muscat area and if you want to help or know someone with a blood disorder, GO AND MAKE A DIFFERENCE. Every small step counts. They need your support.

6 comments:

  1. sounds productive..inshalla ppl start testing!! o i love the camels by the way!!

    http://theveiledbump.blogspot.com/

    ReplyDelete
  2. We really appreciate your support and raising awareness about our association.

    ReplyDelete
  3. Yes it is indispensable for everyone lives in Oman to be aware of what's going on around.but unfortunately things are hidden,so that to be on the safe side not to be blamed.
    these innocent people have nothing to do in such unkown country nothing is revealed from an official sector.
    SO LONG
    AHMED

    ReplyDelete
  4. Ahlam

    You should set up a blog in English and Arabic - if you have not already, and link it to your association's website.

    I wish you well

    JD

    ReplyDelete
  5. Where the hell are you!? :P

    PhantomX

    ReplyDelete
  6. I think most of the Khaleeji Countries are plagued by the same problem, ie, hereditary blood disorders. The inter-marrying within the same families makes the matter worse. I think its good now that many young couples are aware of this issue and are having themselves tested. sf

    ReplyDelete